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Grandson has Kawasaki disease - it's not a joke

Posted: Thu Dec 31, 2009 11:31 pm
by BikerGran
It appears my 3½ year old grandson is suffering from Kawasaki disease.

Not a great deal is known about it as it's very rare but apparently it's not serious in itself but can have complications and they've spent hours at hospital today where he had an ECG because his hearts beating too fast, and various blood tests. He's now on aspirin and another drug, and has to go back next week for a heart scan to find out whether the illness has caused an aneurism or damaged his heart.

They finally got back here from the hospital at 9.30pm to pick up Grace having left her here at 11am on their way in - oh and she's got tonsillitis. They'll have to keep an eye on her as although Kawasaki itself can't be passed on (as far as is known), there can be a genetic link - and when Elliot was ill originally, he was diagnosed with tonsillitis.

Not surprising the Kawasaki wasn't picked up as apparently it affects affects fewer than one in every 25,000 children in the UK.

He'll be on medication for a long time and have to have regular heart scans. It's been a worrying day and we're all relieved that he's well enough to be sent home but we're hoping they do the heart scan very soon.

Posted: Fri Jan 01, 2010 12:04 am
by Samray
That's a bummer Bobbi. Best wishes to all. How long since the misdiagnosis? Has it still been caught early?

Posted: Fri Jan 01, 2010 12:13 am
by Kwackerz
Thankfully he's been diagnosed and not left undiagnosed

http://en.wikipedia.org/wiki/Kawasaki_disease



It could be worse, if it had been Honda disease he would have sprouted wings and a really heavy exhaust pipe...

but seriously, hope he gets well soon Bobbi. Send love from us lot.

Posted: Fri Jan 01, 2010 1:02 am
by MartDude
Best wishes to your grandson & his family, BG. Hardly anything worse than the desolation of having a sick child & being unable to do anything oneself about it

Posted: Fri Jan 01, 2010 10:12 am
by Falken
:smt001
Best wishes to all concerned, hope he makes a full recovery.

And SOON.

Posted: Fri Jan 01, 2010 2:48 pm
by fastasfcuk
thaughts are with you and your family biker.

Posted: Fri Jan 01, 2010 3:25 pm
by D-Rider
Best wishes to all - having a cool name for a disease doesn't make it any nicer.

Posted: Fri Jan 01, 2010 3:40 pm
by Aladinsaneuk
hope all goes well

Posted: Fri Jan 01, 2010 4:16 pm
by Jadaris
Best wishes to all

Posted: Fri Jan 01, 2010 9:09 pm
by BikerGran
Not actually a mis-diagnosis Sam as he DID have tonsillitis, which was probably the virus that set off the rest off it. It was actually some weeks ago unfortunately, as he was improving Rose didn't take him back with the sore lips etc - why would she? We all get sore lips etc when we're ill and she's not the fussy kind of mother. Even the peeling fingers and toes didn't set alarm bells ringing cos he was fighting fit by then!

In fact Elliot's not very good at demonstrating that he's ill - a few months ago he had pneumonia with almost no symptoms, and this time it was pure luck. Rose took Grace to the doctor as she was clearly unwell, and while she was there she thought she'd get Elliot checked as he had a nasty cough and she hasn't forgotten the pneumonia episode. And that was when the rapid heartbeat was discovered, so top marks to the Dr really for sending them straight to the hospital and not adopting a 'wait and see' policy.




Oh and it would be funny if it wasn't potentially serious - Kawasaki disease - both his Dad and Granny have one - guess it's our fault then?

Posted: Fri Jan 01, 2010 10:29 pm
by Samray
Unfortunate but blameless string of circumstances then. Thank god for the resilience of kids.
He will be in my thoughts.

Posted: Fri Jan 01, 2010 11:51 pm
by Kwackerz
Yep very well picked up by the Doc!

:smt001

Posted: Sat Jan 02, 2010 10:35 am
by DavShill
Best wishes to you and your family BG. Hope he's on the mend soon.

Posted: Sat Jan 02, 2010 3:46 pm
by joecrx
hope he gets well soon , i heard about that kawazaki years agp , thought it was a joke then , now im proved wrong

Posted: Sun Jan 03, 2010 11:00 am
by Falcopops
Knowing your penchant for Kwaks I was thinking it was a joke 'till I had a moment of clarity (Vodka has a good hold tonight).

Truly hope all goes well, god luck