RiderSite.com - Motorcycle Forums

Please sign this petition it could just as easy happen to you, I was lucky I have 2 healthy kids but had I had my children with someone else it could have been a totally different story.
How do I know I am a CF carrier?? Because 3 years ago we found out my niece has CF the reason being my twin sister is a CF carrier (which means I am too) and so is my brother in law. Neither of them knew they were CF carriers until they found out their daughter had it..

It could have just as easily happened to my kids, or yours, anyone of you could be a CF carrier without even knowing.

There is now nationwide screening of newborns for Cystic Fibrosis (CF) but there is no publicly-funded screening of adults to determine if they are CF carriers. There is a 1/25 chance that a random adult is a CF carrier. If both parents are CF carriers there is a 1/4 chance their child will have CF. Carriers usually have no symptoms so will be unaware of their status. Carrier testing is done by a mouthwash swab with an instant result and is available privately but not on the NHS. People should not have to play Russian roulette with such devastating consequences.

Please follow the link and sign this petition then pass it on.

http://petitions.PM.gov.UK/CFcarriertest/


Thanks for your support.

Thanks TIGs!
CF is a terrible disease, My half sister had a child who didn't really thrive physically, then two years later had another daughter who was screened and found to have CF, her first child was tested and she too had CF..It is an awful, terrible condition. If this screening programme was initiated, it would help so many...

so Come on let's take just a little time to put our names there

Signed. Hope it helps in some way

Signed

Could see you on the list Graham .... next to a Martin Spriggs (the one we know or a coincidence?)

My name doesn't seem to have popped up yet ... or yours Kwackerz

(how long do these lists take to update?)

You'll get an email which you have to click to confirm.
My name's there..

Or at least it was on the list I viewed when I confirmed!

Kwackerz wrote:You'll get an email which you have to click to confirm.
My name's there..

Yeah ... clicked and confirmed before I posted

still can't see either of us - but I'll believe we're signedup

Thanks Guys

Signed, just waiting for the email.

I didn't know that the possibility of being a carrier was 1 in 25 - that's much higher than I thought.

I know survival times have got longer for CF sufferers but it's a hard way to live, my other half had a colleague whose daughter had it.

Signed, hope it helps.